You are starting to think I only post up on here when it’s bad… well I’m trying not to but it’s hard
Currently living in hospital, now 1 month in …
Charlie fell poorly on a Monday night 4 weeks ago
After a few grumpy days previously, Monday was good, we’d played with the bubble machine, practised sitting and been to visit relatives, we came home and went shopping using the sling, he loved it
When it came to bedtime after his bath he cried, and didn’t stop; teething we thought, after a while daddy took him for a drive to get him off and when he came back with a crying charlie still; getting so worked up, he was almost hiccuping whilst crying
I picked him up to give him a cuddle and he puked all over me (and my new top!)
He then went… odd; would be a good word, lethargic and almost like he was falling asleep on me, I took him upstairs and laid him on the changing mat on his tummy for him to carry on puking, something wasn’t right 😦 I shouted at Matt to call someone and he called 111 I think
Whilst he was getting asked the questions I picked Charlie up again and he just went floppy 😦 It happened again, With me shouting at poor Matt to get them to send someone out
8 minutes they said, what seemed like forever, but was actually 5 minutes, our saviour arrived. I don’t recall much, Charlie had perked up a little but was still crying, and the paramedic told us he had to arrange for us to go to A&E as precaution, so an ambulance turned up and I think a few curtains twitched
Charlie was still being sick and floating from sleeping to crying, He was in my arms on way to A&E in the ambulance
Right about now I felt a fraud, feeling that my son was poorly with a sick bug and that I’d get laughed at when we got to A&E for being a stupid over protective mother
At A&E they found us a room and we laid Charlie down on the bed and left us for a bit, did a few obs on him and he was the same, crying/sleeping.
About an hour later one of the nurses came in and looked at him, all of a sudden we were being moved to resus area… machines on, bloods attempted; quite scary…
We aren’t sure what they saw in him but so glad they did. They needed to get the paeds down from the kiddies ward to do a blood sample as Charlie wasn’t giving them a vein, it took 45 minutes to get bloods out of him and a line in
It was then they told us they were suspecting meningitis, as about 7 tiny pin prick spots were spotted on him, I have no idea if those spots were there before or not.
So antibiotics on and transferred to ward at about 3am, finally settled, he got a tad of sleep, daddy went home and mummy got about half an hour.
His heart rate and sats were odd but they were monitoring them, but at about 4.30am he became quite unsettled and I asked them to check him again; his lips were blue, body was white, and massive red blotches, they kept talking about profusion
Suddenly it seemed like the whole ward came in the room, several of them ‘working’ on him. I called daddy back; think he’d only had an hours sleep 😦
They’d had to increase his fluids, he looked so much better by the time daddy arrived and I think we were then moved to HDU, which only has 3 beds in.
A lot of the morning was a blur, I think they had ruled out meningitis as the spots were unchanged and not increasing, but they knew they were dealing with a serious infection, of what we had no idea. At this point, they called Leicester Royal Infirmary for advice I think, and possibly for a retrieval; they knew they had a poorly boy on their hands
They tested for Diabetes as blood sugar was very high (21) and also suspecting a gastroenteritis bug or blocked bowel, given his history, whilst they were trying to find the problem, he seemed to settle for a bit.
… But not for long… he started showing similar signs of what had happened before with the profusion and the IV line they were using was failing, they needed a line in quick to get him stable, they just couldn’t get a vein 😦 He needed fluids fast.
They said they needed to put an IO line in, I will talk more about this in a minute, basically its a line direct into the bone marrow, sounds painful? They said it would be quick and painless. We waited in the parents room, scared, not knowing what to think
I think a couple of hours passed before they said we could go back. IO line had been unsuccessful in both legs, he had very sore looking legs where they had used the ‘gun’ yes, gun, on him to try and get the lines in. However he was sporting a lovely IV line into the groin. Finally, they could treat him!
He was very upset, crying sleeping still, I hope he didn’t know what was going on and the horrid stuff he’d been though already in those 12 hours 😦
HDU was now Charlies room, all other kids had been moved out; and the door was shut, this was a kind of message to us
Me and Matt were worried, upset, I had to leave the room, Charlie didn’t know we were there, we sat in a private room (with tissues in; if anyone had read my previous posts) and just numb and worried…
Someone bought us tea and biscuits, a simple task to them but a welcome distraction
It had been arranged for Leicester (LRI) to come and retrieve him, so they could treat for a suspected severe infection possibly caused by a blocked bowel with a view to operating, because bowel issues can become very serious, very quickly.
We had a nurse and a doctor come over for Charlie from LRI, they needed to stabilise him for the journey, I am not sure we knew he wasn’t stable but they talked about sedating him, ventilating him, giving him a muscle relaxant so he couldn’t move, a wee catheter (tube for this was red; more on that later) and then transporting him.
So they got to work… He was planned to go to Intensive Care Unit so by now, we knew it was very serious.
The doctor came to talk to use before they left, They reiterated that Charlie was very poorly, but on his way to a good place, they were pretty sure it was a severe infection brought on by a bowel blockage.
We had had to sign a consent form for the sedation and ventilation with a planned blood transfusion for him whilst en route to LRI.
The thing that sticks out in my mind the most… where they have to write what the benefits of doing all this to our Charlie was one word…
We went in to see the asleep, sedated, ventilated Charlie before they left, he had skin coloured tape holding the ventilator tube in place, and his face looked like it had a bright light shining on him, except it wasn’t a light, his skin was white, the skin coloured plaster looked so dark compared to him. He was hooked up to about 10 drips, I’ve no idea what for. To save his life no doubt.
I think to date it’s the worst moment of my life; that minute of saying goodbye to him, leaving our poorly baby to be rushed to LRI up the M1 to face whatever fate had in store
I’m going to have to finish this another day, bit of a cliffhanger there…